Adelaide family fights against rare illness

The Upside News

Alicia Violante is fighting back against the genetic disorder she was born with and dedicating her
life to raising awareness for Hereditary Hemorrhagic Telangiectasia in her brother’s memory.

Alicia Violante lives with HHT, a rare condition. Alicia Violante lives with HHT, a rare condition.

Hereditary Hemorrhagic Telangiectasia (HHT) is a hereditary disorder which affects major organs,
causing the blood vessels in them to build up pressure and potentially burst.

The 21 year old, who was only 14 when she discovered she had the condition said she didn’t really understand the severity until her brother Matthew died suddenly in 2011 from HHT related
complications.

“When I was younger, I couldn’t do netball training or be outside in the heat too long but never knew why so when I found out I had HHT, it made more sense. My grandmother died from it, my mum has it and it took my brother too,” she said.

The bright, young UniSA student studying psychological…

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